Wednesday, September 17, 2014

Red Flags

How did my life become a world of acronyms? Before I can head to where I'm going I have to tell you where I've been. Bare with me, we have 8 years to catch up on.

I will start with my dark dirty secret. An admission that might get me banned from the Autism Blogoshpere before I even begin.

When I was pregnant, I loved...I mean, carried with me everywhere and recommended to everyone type of loved...Belly Laughs by Jenny McCarthy.



Wait! Don't go! Hear me out!



-Let me first start by stating, in black and white: I don't think vaccines cause autism. I, like everyone else, have no solid evidence what causes it. I may have theories but they are just that, my theories.  I'm already in this world so it really doesn't matter what the cause is anymore. My focus is now on just helping my son for the future.-

I was the first one in my group of friends to get pregnant. I had no one my age to relate to and most baby books were all about how wonderful pregnancy is and how amazing it was to grow this life inside you.

All good reading for most women, but my pregnancy sucked. I hated it. I had morning sickness that lasted 9 months. I was on crutches because my pelvis decided to started to separate early for some unknown reason. My husband and I were at each others throats. Even the milestones most women talk gleefully about I hated. When I first started feeling my son move in my belly it didn't feel like "butterflies" or "popcorn" as the froufrou books described. NoOOOoo. It felt like he was scraping my insides with a spoon like you would with a watermelon rind. I hated pregnancy!

Belly Laughs was the only book I found that I could relate to. It took the picture perfect view I kept seeing of pregnancy and re-posted it with no soft focus filter. I finally got someone who understood me and what I was going through. She talked candidly about all the things I needed to relate to. Constipation, hormone rages, greasy skin,  Pregnancy isn't all kitten whiskers and unicorn farts and Jenny McCarthy was my best friend now for admitting it with me. So when she spoke about he son's autism I listened.

From the moment I found out I was having a boy I feared autism. It was the boogie man that slept under the crib. Every Autism Speaks commercial reminded me that I had a 1 in 68 chance of having a child that I would read about. They don't like physical touch, have no emotional connection and will never look people in the eye. That's what I thought all autism was. In my mind I imagined a child shaped shell...or a cat. My BFF Jenny's reveal when her son was diagnosed only added to my paranoia.

But Jenny said that when her son had the MMR vaccine she saw almost an immediate change. When The Boy got his shot I saw nothing, so we were good. The boogie man still followed me around quietly in my head though. I knew the Red Flags of Autism to watch for and I would go over them again and again throughout the first 3 years of my son's life, waiting for his personality to be taken away from me.

 I checked them off one by one.
  • Lack of eye contact - Nope he looks us in the eye
  • Lack of pretend play - He pretends. Not a Game of Thrones detailed story line...but he pretends.
  • Decreased response to adults - He responded to us and I could tell when he was intentionally ignoring to get into trouble.
  • Not point to objects to show interest - He let me know every truck, car, bus, boat, bird, etc. we passed.
  • Resists or avoid physical contact - Not this boy. He'll go up to complete strangers for a snuggle.

We made it to 4 years old and I was relieved. Whew. No check marks. No red flags. He remained the same awesome boy I loved. The boogie man had been defeated. No autism here. No sir-ree-bob. Man did we dodge a bullet. Just smooth sailing in the parenting seas from now on.

Obviously

Monday, September 15, 2014

And we're live......

Wow...here it is.

It feels weird putting my life and that of my family out on the interwebz.

Why am I doing this?  

Why would any sane person put their personal thoughts and stories out to the world to be criticized and ridiculed by strangers? Why would someone leave the safe bubble of friends and family that are supportive and, if they judge, only do so in loving silence?

Short answer:
I'm bored, a glutton for punishment and...lets be honest...no one never accused me of being completely sane.

Long Answer:
There are so many amazing people and their blogs have helped me in my understanding, acceptance and loneliness living with a child recently diagnosed with ASD...they have become my Spectrum Sherpas. When I first started reaching out for people like me with kids like The Boy and I then found these people I felt like I was home.

Even in this online world of fellowship, being a parent to a child with ASD is a lonely and scary place. The future, far and near, is always uncertain. It's nice to have someone to talk to even if it's myself.

So I'm putting myself out there. The good, the bad, and the ugly. I'm by no means an expert or even a veteran of this world. I've only just joined the ranks in the past year but have spent my son's life in the trenches with him. If I can make some other newbie ASD mom or dad feel like they are not alone, know it's OK to laugh threw the tears, and let the IPad babysit so they can have a beer and enjoy a TV show with out cartoon characters it's worth it. Or at least I hope it will be.

Here goes nothing...